Tag Results for "CCRC"
Children’s Cancer Research Coalition
Welcome to the Children’s Cancer Research Coalition (CCRC), a program of the NCC.
Cancer is the leading cause of death in children due to disease, and each year in the United States, more than 12,000 kids are diagnosed with leukemia, brain tumors or some other type of pediatric cancer. The terrible reality is that around 20% of these children will not survive.
NCC provides Angel Grants to leading American researchers investigating cancers in children and in the past it has provided support to over 20 innovative pediatric cancer investigators that are seeking a cure for our children. A major feature of this program is that CCRC also distributes life-saving medicines that benefit children with cancer and other serious diseases in the United States and in the developing world. In the past year, the CCRC program has provided in kind resources exceeding $9 million.
The CCRC is providing access to modern FDA approved specialty and biological medicines to pediatric patients all over the world who require these medicines. Throughout the world, children with cancer or serious genetic or chronic diseases are typically not able to access the leading and proven therapies to properly treat their illnesses. These medicines often require refrigeration and special handling, for which NCC has developed experience and expertise. NCC partners with global manufacturers of innovative therapies to create access of life-saving drugs for pediatric patients with cancer, leukemia, hemophilia, and enzyme deficiency diseases. The patients that we target are poor with insufficient or no insurance, who would otherwise not receive these medicines.
In the past year, NCC again provided vital Factor VIII and Factor IX to American children with hemophilia that were participating in special summer camps accross the United States. This initiative was in partnership with Pfizer and it increased assistance to over $850,000 worth of these life saving therapies, which enabled these children to safely participate in their summer camp programs. NCC was also able to expand this program by receiving support from BD, which provided medical consumables that benefits campers with cancer and other types of serious illnesses.
Access to live-saving medicines to treat again leukemia and brain tumors are much needed in the developing world, regions where survival again cancers are often less than 30% compared to 80% survival in America. With our CCRC projects, NCC has played a huge role in securing these needed medicines and then partnering with overseas public pediatric cancer hospitals that are qualified to properly administer the chemotherapy to underserved patients who would otherwise go without.
Your support helps us reach kids just like these who are already afflicted by providing direct aid and medicines throughout the world. That’s what CCRC is focused on - giving kids back their good health.
Learn more about our CCRC project by exploring the stories below:
Out of the blue, in just two days, Ana went from perfect health, to total crisis and hospitalization. In lightening succession her symptoms moved from bruising to bleeding gums to extreme fatigue followed by incapacitating headaches, and finally culminating with high fever. In precarious shape, Ana was immediately put in ICU where she was eventually… More
Quietly confident, well mannered and handsome, you would never know that young David had already fought the battle of his life, against leukemia. Now, at the age of seven, he is in remission. Bright eyed and happy, he looks like any other boy. But to his mom, he is a miracle in progress. Their long journey to this point has been fraught with roadblocks.… More
How can you make sense of this? Alice, sitting alone on a hospital bed - in a plain white hospital gown, poised, elegant, beautiful and waiting - for her chemotherapy treatment. It doesn't seem right, a sweet twelve-year-old girl and this cruel relapse of leukemia. One of twelve children, Alice and her sister have made their way here to the… More
Dr. Tobey MacDonald of Emory University in Atlanta wondered for years about the effects of radiation treatments on very young children who have been diagnosed with cancer—different kids seem to come out with different side effects. Some kids have long-term developmental issues afterwards, but other children emerge from the treatment completely… More
Dr. Thomas McLean has worked at the Brenner Children’s Cancer Hospital in Winston-Salem, NC for over 10 years. In that time, he’s worked with many patients whose cancer has gone into long-term remission, and with others whose cancer has returned. The question in his mind has been, “Is there a correlation between the treatment we… More